FREQUENTLY ASKED QUESTIONS
What conditions does the Institute specialize in?
We specialize in the treatment of Peripheral Neuropathy,
regardless of the cause. We also specialize in most types of surgery
of the Hand, Arm, Leg, Foot as well as Peripheral Nerves.
What are the symptoms of Peripheral Neuropathy?
Typically, the symptoms may include one or more
of the following in the hands, arms, legs or feet: a burning or
tingling or similar sensation; mild to extreme pain, and/or loss of sensitivity
or sensation.
Could I have PN even if I have never been diagnosed
with Diabetes?
Yes, even though Diabetes is the leading cause
of Peripheral Neuropathy (“PN”) there are over 100 known
causes of Peripheral Neuropathy. Sometimes the cause is unknown,
in which case the PN is referred to as “Idiopathic” Peripheral
Neuropathy. Some other causes of PN, for example, are undiagnosed
diabetes, repetitive motion injuries, sports injuries, trauma, chemotherapy
for cancer treatment, occupational exposure to toxins, and various environmental
exposures.
Why is it important to treat PN if it is “not
really bothering me”… what is the optimal timing for intervention?
In our experience and that of many experts in the
field, many symptoms of PN are due to nerves that have swollen (due to
diabetes or other factors) or otherwise become “compressed” as
they travel through certain narrow anatomical tunnels, in the arms, legs,
hands and feet, similar in many ways to Carpel Tunnel Syndrome. As
these swollen nerves pass through these tunnels, they are “pinched
off”, thereby cutting off the flow of oxygen and other vital nutrients
(“ischemia”) to the part of the nerves coming out of the
tunnel (“proximal nerve”). The symptoms of burning,
tingling, pain, loss of sensation, etc. are signs that the nerves are
being deprived of oxygen and nutrients, etc. and that the nerves may
be in some stage of dying or death. It is important to treat PN
early to prevent too much nerve tissue from dying. Once a certain
amount of nerve tissue has died, it is difficult or not possible to reverse
the symptoms. Left untreated, PN may lead to infections,
ulcers, amputation and disability in some patients. The optimal
time to be seen by our specialists is when you first notices you have
any of the above symptoms for an extended period of time. However,
we have successfully treated patients at later stages of PN.
What are the treatments generally available to
treat PN? What are the options?
In our experience, the only option offered by most
physicians is medication to help ease pain. As a matter of fact,
according to one recent report, over 98% of patients have been told by
their doctors that nothing could be done to help them, except the use
of pain medication.
You may also come across several ”novel” or “alternative” treatments
involving different types of gadgets that are unproven, and are probably
a waste of your time and money. None that we have seen are backed
by what we consider to be responsible medical doctors.
However there is a procedure available called “nerve
decompression” which we find is highly effective in treating
the pain, loss of sensation and other symptoms associated with PN in
most patients. It is a straight forward procedure, similar in many
ways to the well known “Carpel Tunnel Procedure” that takes
about ninety minutes, and the patient goes home the same day. It
is done in a hospital or on an outpatient basis.
How does the nerve decompression procedure work?
It is known that in the majority of patients with
PN (except sometimes in the case of PN due to injury for example)
the peripheral nerve fibers that run between your spine and your hands,
or your spine and your feet , become “swollen”. For
example, in the case of PN caused by Diabetes, the nerves become swollen
due to osmotic pressure from higher than normal (non-diabetic) blood
sugar levels.
As these swollen nerves pass through certain fixed
anatomical bony narrowings or “tunnels” in the arms and legs
(i.e. in the elbow, wrist, behind the knee, in the ankle or the foot)
the Peripheral Nerves can become “Compressed” against the
inner “walls” of the tunnels if the nerves become swollen. As
the nerves are essentially “choked off”, the amount of oxygen
and nutrients traveling to the nerve past the "choke point” can
become limited; therefore resulting in the symptoms of pain and loss
of sensation as the nerve fibers start to become compromised and eventually
start to die. By opening up these tunnels, with a minor surgical
procedure similar to a Carpel Tunnel Procedure, the affective nerve fibers
become ”decompressed” and the flow of oxygen and nutrients
is restored to the nerve fibers; which then leads to satisfactory resolution
of the symptoms of pain and loss of sensation, etc. in most patients.
Where was the Decompression Procedure Developed?
At Johns Hopkins University Medical School, in
Baltimore, Maryland, by Professor Lee Dellon, M.D. over 12 years
ago. It is also therefore known as the “Dellon Procedure”.
Future Treatments for Peripheral Neuropathy:
We are constantly monitoring the medical literature
and communicate with many experts on PN around the world, in order to
stay up to date on the development of any new treatments that are safe
and effective in treating PN; and you can be assured, if they make sense,
we will make them available to patients at the Institute as they become
available.
One treatment that may provide useful in the future
for patients with mild or early stage neuropathy, is a class of drugs
known as “Aldosterone Inhibitors”. In clinical trials,
these medications seem to be somewhat useful in preventing the swelling
of the nerve fibers in early stage neuropathy, thereby preventing compression. Whether
or not these medications will be commercially available is not known,
but we will offer them to appropriate patients as soon as they become
available.
Why
is the nerve compression procedure better that other currently alternatives?
Because the only other generally available treatment
that is offered is pain suppression with medication. These pain
medications often do not work to relieve neuropathic pain adequately,
and in many patients, they have adverse side effects. But maybe
the most important reason is that unlike these pain medications, the
nerve compression procedure seems to prevent the PN from progressively
getting worse, loss of sensation may lead to ulcers, amputations and
other complications and disabilities.
How effective are the treatments?
Nationally, in a study of over 1,000 patients,
over 85% of patients reported good to excellent results. And, to
the best of our knowledge, not one of these patients has gone on
to require amputation since the beginning of the study 12 years ago. Statistically,
if these patients had not had the procedure, many of them would be expected
to have required amputation(s).
Because of the particular level of expertise available
at the Institute, our patients have over a 95% level of satisfaction.
Where are the procedures performed?
In an ambulatory surgical center or at the hospital
adjacent to the Institute. No overnight stay is required in most
cases.
How long does the treatment take to perform?
Usually about 90 minutes to 2 hours depending on
existing nerve damage caused by the compression.
What can I expect during the recovery time after
the procedure?
In most cases, you will require the use of crutches
or a walker for about a week. You should be able to resume your
normal routine in about 2 – 3 weeks.
Do you take insurance? Which Insurances?
We accept Medicare or cash . Most insurance
companies will reimburse you for some or all of the costs of the procedure. We
will give you the appropriate papers to file with your insurance company.
What if I do not have insurance?
We can work out a payment plan, and in some cases,
the fees may be reduced for hardship reasons.
Can I make arrangements for treatment if I am not
living in California?
Certainly, please call our office for more information.
How can I schedule an appointment?
Call us at (818) 758-0200
We Look Forward to Hearing from You.
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